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Knowledge, education and understanding are uppermost in management plans for tic disorders, [6] and psychoeducation is the first step. [14] [15] A child's parents are typically the first to notice their tics; [16] they may feel worried, imagine that they are somehow responsible, or feel burdened by misinformation about Tourette's. [14]
The Tourette Association of America (TAA), based in Bayside, New York, United States, is a non-profit voluntary organization and the only US health-related organization serving people with Tourette syndrome. It was founded in 1972 as the Tourette Syndrome Association (TSA), later changing its name.
The film examines the lives of more than a dozen children who have Tourette's, and explores the challenges they face. The 27-minute television documentary was produced by HBO in conjunction with the Tourette Syndrome Association (since renamed to TAA), and first aired on HBO on November 12, 2005.
DBS has been used experimentally in treating adults with severe Tourette syndrome who do not respond to conventional treatment. Despite widely publicized early successes, DBS remains a highly experimental procedure for treating Tourette's, and more study is needed to determine whether long-term benefits outweigh the risks.
NORD's operations include funding research on treatment and cures for rare diseases; lobbying for legislation to benefit the rare diseases community (in addition to the Orphan Drug Act, NORD has helped bring about legislation on publicizing clinical trials on the Internet, to give the public and medical professionals warning about projected ...
John Davidson MBE (born 1 June 1971) is a Scottish campaigner for Tourette syndrome, who lives in Galashiels. [2] At age 16, Davidson was the subject of the BBC TV documentary John's Not Mad (1989) about the manifestations of Tourette syndrome with which he lived, and a number of follow-up BBC documentaries throughout his life.