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Cystic fibrosis (also known as CF or mucoviscidosis) is an autosomal recessive genetic disorder affecting most critically the lungs, and also the pancreas, liver, and intestine.
Alex: The Life of a Child is a biography and film about the life and death of Alexandra Deford from cystic fibrosis. [1] After her death in 1980 at the age of eight, her father, Frank Deford, a sportswriter, was inspired to write a memoir about Alex three years later. The book depicts Alex's determination to make the best of her circumstances ...
Cystic fibrosis: CF can cause skeletal muscle atrophy, however more commonly it can cause exercise intolerance. The exercise intolerance is associated with reduced pulmonary function that is the origin of CF. [4] Bronchiectasis
For the least active, moving up to the second group brought gains in life expectancy of 0.6 years, while going up to the third group added 3.5 years—corresponding to life expectancy at birth of ...
Cystic Fibrosis Research Institute has implemented strategies to increase awareness in underrepresented populations. [38] Though there is ongoing research about cystic fibrosis in underrepresented populations, many of the studies leave much to be desired and are not performed to the standards of studies conducted in white patients.
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Cystic fibrosis is an inherited (genetic) disease that can present with symptoms within the first two years of life. The genetic defect results in the production of thick mucus in the lungs, pancreas, liver, small intestine, and reproductive organs.
Claire Lucia Wineland (April 10, 1997 – September 2, 2018) was an American activist, author, speaker and social media personality. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF).