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The Foundation provides information about Marfan syndrome and funds research for the purposes of saving lives and improving the quality of life for people affected by the condition which is a genetic connective tissue disorder. The Foundation also lobbies Congress to fund Marfan syndrome research and engages in its own fundraising activities.
In memory of Larson, in 1996, the Larson family along with the Jonathan Larson Performing Arts Foundation established an award honoring emerging musical theater writers and composers. [34] In 2008, the American Theatre Wing adopted and continued on the legacy through the Jonathan Larson Grants, an unrestricted cash gift to aid in the creative ...
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She also had undiagnosed Marfan syndrome, a disease Carlile would genetically inherit. [30] [31] Although raised Catholic, Carlile became disillusioned with the religion for a while in the wake of his mother's sudden death. However, on July 3, 2016, Carlile was baptized and has identified as a Christian ever since.
The debut single "Heal" was released by Domino Recording Company's sister label Double Six on 26 November 2012. [3] The accompanying video was shot in Atlanta, Georgia by the LA-based duo Focus Creeps (who have previously directed videos for Arctic Monkeys and Girls). [4]
Marfan syndrome (MFS) is a multi-systemic genetic disorder that affects the connective tissue. [ 6 ] [ 7 ] [ 1 ] Those with the condition tend to be tall and thin, with long arms, legs , fingers, and toes . [ 1 ]
Bradford James Cox (born May 15, 1982) is an American singer-songwriter and musician, best known as the lead singer and guitarist of the indie rock band Deerhunter.He also pursues a solo career under the moniker Atlas Sound.
Antoine Marfan Award, National Marfan Foundation (1996) President, International Federation of Human Genetics Societies (2000-2002) Elected President, American Society of Human Genetics (1999) Elected Member, American Academy of Arts and Sciences (1997) Elected Fellow, American Association for the Advancement of Science (1995)