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In the United States, healthcare insurer Cigna decided, in 2023, to reverse its prior decision to cover the cost of the medication for all ALS patients, opting instead to cover "patients who meet certain clinical criteria", arguing that the drug is "experimental, investigational or unproven". [24]
Riluzole is a medication used to treat amyotrophic lateral sclerosis (ALS) and other motor neuron diseases. Riluzole delays the onset of ventilator-dependence or tracheostomy in some people and may increase survival by two to three months. [5] Riluzole is available in tablet and liquid form.
When the medication launched in Japan for ALS in 2001, the price was $35,000; the price in Japan in 2017 was $5,000, the US price at launch was around $145,000. [11] In the US the medication was approved for all people with ALS but it was unclear at approval whether insurers would agree to pay for the medication for all people with ALS, or only ...
With ALS treatments, success is measured by extending patients' lives by months. Some hope new drugs now being tested could slow the disease. A new ALS drug is extending patients' lives by months.
Based on a 2024 analysis of insurance data, researchers found that the average annual cost per individual living with ALS significantly rose as the disease progressed, starting at $31,411 in the ...
ALS patients experience severe symptoms as the fatal, rare disease progresses. Patients shared how they're fighting for better treatment to be available faster.
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