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Researchers remove individually identifiable PHI from a dataset to preserve privacy for research participants. There are many forms of PHI, with the most common being physical storage in the form of paper-based personal health records (PHR). Other types of PHI include electronic health records, wearable technology, and mobile applications.
Title II of HIPAA establishes policies and procedures for maintaining the privacy and the security of individually identifiable health information, outlines numerous offenses relating to health care, and establishes civil and criminal penalties for violations. It also creates several programs to control fraud and abuse within the health-care ...
HIPAA provides a federal minimum standard for medical privacy, sets standards for uses and disclosures of protected health information (PHI), and provides civil and criminal penalties for violations. Prior to HIPAA, only certain groups of people were protected under medical laws such as individuals with HIV or those who received Medicare aid. [41]
The 834 is used to transfer enrollment information from the sponsor of the insurance coverage, benefits, or policy to a payer. The format attempts to meet the health care industry's specific need for the initial enrollment and subsequent maintenance of individuals who are enrolled in insurance products.
Signed in law on August 21, 1996, Health Insurance Portability and Accountability Act (HIPAA) is a piece of legislation passed in the United States that limits the amount and types of information that can be collected and stored by healthcare providers. This includes limits on how that information can be obtained, stored, and released. [27]
Safe harbor relies on the removal of specific patient identifiers (e.g. name, phone number, email address, etc.), while the Expert Determination Method requires knowledge and experience with generally accepted statistical and scientific principles and methods to render information not individually identifiable. [22]