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A rare disease is a disease that affects a small percentage of the population. In some parts of the world, the term orphan disease describes a rare disease whose rarity results in little or no funding or research for treatments, without financial incentives from governments or other agencies. Orphan drugs are medications targeting orphan ...
As with any disease, whether it's rare or common like high blood pressure, knowledge brings awareness that can be life-altering. The insights on these 10 rare diseases will help you improve your ...
A rare disease is technically defined (in the European Union) as a disease that is found in fewer than 5 people per every 10,000 people. ...
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. [1][2][3][4][5][6] The date is chosen because in leap years it is February 29, the rarest date.
The rare disease community is a close-knit group of patients, parents and specialists determined to break down healthcare barriers for patients with rare diseases. Rare disease patients — over ...
An ultra-rare disease is a disease that affects an extremely small percentage of the population. In some parts of the world, an ultra-orphan disease is a rare disease whose rarity means there is a lack of a market large enough to have support and resources for discovering treatments for it. [1][2][3] Distinct countries define and provide ...