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Spina bifida (SB; / ˈ s p aɪ n ə ˈ b ɪ f ɪ d ə /; [9] Latin for 'split spine') [10] is a birth defect in which there is incomplete closing of the spine and the membranes around the spinal cord during early development in pregnancy. [1] There are three main types: spina bifida occulta, meningocele and myelomeningocele. [1]
All cases concerned newborns with spina bifida and hydrocephalus. In all cases, at least 2 doctors were consulted outside the medical team. In 17 of 22 cases, a multidisciplinary spina bifida team was consulted. All parents consented to the termination of life; in 4 cases they explicitly requested it.
support to parents before and around the birth of their baby, or diagnosis of the disability; support to the child and family on educational matters; specialised information and help on health matters; helping young people access services to progress towards control of their lives; responding to the needs of adults with spina bifida and/or ...
George was unable to walk due to spina bifida. [7] They spent the first twenty-four years of their life in an institution for the mentally disabled. They lived without assistance in high-rise apartments for the elderly in Reading, Pennsylvania from 1988 until their death in 2024. [8]
On September 25, 2003, the boy's parents, Alex and Julie, testified before the U.S. Senate Subcommittee on Science, Technology, and Space about the photograph and their experience with in-utero surgery. Today, Samuel is nearly four years old and has not had to endure the surgeries that are common for most children with spina bifida.
During this time, prenatal ultrasound had not been invented, so Brei's diagnosis came as a surprise to his parents. [3] Brei grew up in rural Nebraska. [3] With no cure for spina bifida in the 1950s and limited medical interventions, Brei's parents fostered independence from an early age. [2] [3] At the age of four, Brei began playing piano.
An elementary school teacher in Kentucky is going viral after he helped a fourth grader in a wheelchair attend her school's field trip.
Robert Michael Hensel (b. May 8, 1969 [1]) was born with the birth defect known as Spina bifida.He is also a Guinness World Records holder for the longest non-stop wheelie in a wheelchair, covering a total distance of 6.178 miles. [2]