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The Patient Self-Determination Act guarantees a patient's right to formally designate a surrogate to make treatment decisions for the patient if the patient becomes unable to make their own decisions. A surrogate decision-maker, or durable power of attorney for health care (DPA/HC), must be documented.
Patient advocacy, as a hospital-based practice, grew out of this patient rights movement: patient advocates (often called patient representatives) were needed to protect and enhance the rights of patients at a time when hospital stays were long and acute conditions—heart disease, stroke and cancer—contributed to the boom in hospital growth.
The Alzheimer's Impact Movement (AIM) is a separately incorporated 501(c)(4) advocacy affiliate of the Alzheimer's Association. AIM works to secure policies to overcome Alzheimer's and dementia, including increased investment in research, improved care and support, and development of approaches to reduce the risk of developing dementia.
For many, Patient Advocacy Groups, or Patient Organizations, can help answer those questions. These groups, typically non-profit organizations, promote the needs and priorities of local patient ...
The organisation works to establish dementia as a global, regional and local priority through empowering Alzheimer and dementia associations to advocate for dementia as a national priority, to raise awareness and to offer care and support for people with dementia and their care partners; as well as campaigning for better policy from governments ...
There were three critical elements of developing a profession on the table in these early years: association, credentialing and education. The Society for Healthcare Consumer Advocacy was founded as an association of mainly hospital-based patient advocates, without the autonomy characteristic of a profession: it was and is a member association of the American Hospital Association.
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