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In 2005 Robert Entenmann of St. Olaf College wrote that the book is "certainly the most widely read book on the Hmong experience in America." [ 2 ] On the most basic level, the book tells the story of the family's second youngest and favored daughter, Lia Lee, who was diagnosed with a severe form of epilepsy named Lennox-Gastaut Syndrome , and ...
Against danger at sea, against temptations, sick people, storms at sea, police officers – Michael the Archangel; For protection against the dangers of the sea – Wulfram of Sens; Against sepsis – John Henry Newman; The sick, asthma sufferers, nurses and carers – Bernadette; Those who serve the sick – Peter of Saint Joseph de Betancur [25]
Some people consider it best to use person-first language, for example "a person with a disability" rather than "a disabled person." [1] However identity-first language, as in "autistic person" or "deaf person", is preferred by many people and organizations. [2] Language can influence individuals' perception of disabled people and disability. [3]
The risk of sudden death in young adults with epilepsy is increased 20-40-fold compared to the general population. [32] [33] [20] SUDEP is the number one cause of epilepsy-related death in people with pharmacoresistant epilepsy. [20] Children with epilepsy have a cumulative risk of dying suddenly of 7% within 40 years. [20]
Epilepsy can have tremendous social issues for patients. Social acceptance from others is a common challenge. Though persons with epilepsy are otherwise just like anyone else, there are stigmas associated with epilepsy that can affect one's acceptance among others. Depression is common due to impaired social acceptance. [1]
Approximately 30% of people with epilepsy have a drug-resistant form. [4] Achieving seizure control in DRE patients is critical, as uncontrolled seizures can lead to irreversible damage to the brain, cognitive impairment, and increased risk for sudden unexpected death in epilepsy.
AERD affects an estimated 0.3–0.9% of the general population in the US, including around 7% of all asthmatics, about 14% of adults with severe asthma, and ~5-10% of patients with adult onset asthma. [2] [3] [8] AERD is uncommon among children, with around 6% of patients, predominantly female, reporting disease onset during childhood. [9]
By some estimates, as many as half of individuals with severe brain trauma experience PTE; [19] other estimates place the risk at 5% for all TBI patients and 15–20% for severe TBI. [21] One study found that the 30-year risk of developing PTE was 2.1% for mild TBI, 4.2% for moderate, and 16.7% for severe injuries, as shown in the chart at right.
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