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There is little government regulation on dataset management, so it can be challenging to determine when content deletions occur. [2] [3] Determining the reasons for removals and the significance of them also is difficult. [3] All administrations make modifications to public websites, but there is little research on how much change is typical. [3]
The Healthcare Cost and Utilization Project (HCUP, pronounced "H-Cup") is a family of healthcare databases and related software tools and products from the United States that is developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ).
A database of biomedical and life sciences literature with access to full-text research articles and citations. [56] Includes text-mining tools and links to external molecular and medical data sets. A partner in PMC International. [57] Free EMBL-EBI [58] FSTA – Food Science and Technology Abstracts: Food science, food technology, nutrition
The Healthcare Effectiveness Data and Information Set (HEDIS) is a widely used set of performance measures in the managed care industry, developed and maintained by the National Committee for Quality Assurance (NCQA). HEDIS was designed to allow consumers to compare health plan performance to other plans and to national or regional benchmarks.
Large and diverse collection of raw data from various research studies distributed under permissive licenses (CC0 and CC BY). All datasets are formatted according to the same format (Brain Imaging Data Structure) and can be accessed via Amazon S3. Human Macroscopic Functional, structural, diffusion MRI, and Magnetoencephalography datasets
In March 2011, IHME launched the Global Health Data Exchange (or GHDx), which indexes and hosts information about microdata, aggregated data, and research results with a focus on health-related and demographic datasets. At launch, the site listed about 1,000 datasets; as of 2015, there are more than 30,000.
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