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The Sarah Murnaghan lung transplant controversy began in late May 2013, when the parents of a ten-year-old Philadelphia area girl with cystic fibrosis, Sarah Murnaghan, launched a campaign to change the under-12 policy of the United Network for Organ Sharing (UNOS), which they asserted was age discrimination.
Cystic fibrosis (also known as CF or mucoviscidosis) is an autosomal recessive genetic disorder affecting most critically the lungs, and also the pancreas, liver, and intestine.
Alex: The Life of a Child is a biography and film about the life and death of Alexandra Deford from cystic fibrosis. [1] After her death in 1980 at the age of eight, her father, Frank Deford, a sportswriter, was inspired to write a memoir about Alex three years later. The book depicts Alex's determination to make the best of her circumstances ...
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Davies worked on the development of Cystic fibrosis transmembrane conductance regulator (CFTR) gene therapy. [1] [7] She led the first trials of CFTR modulators in young children. She conducts bronchoscopic assays and electrophysiological measurements. [4] She was made a Reader in 2009 and a Professor in 2013. [4] Davies investigates cystic ...
According to the Cystic Fibrosis Foundation’s website, the genetic disorder impacts the lungs, pancreas and other organs. There are close to 40,000 children and adults living with it in the US ...
Common chronic illnesses in children include asthma, diabetes, cystic fibrosis, obesity and overweight, malnutrition, developmental disabilities and differences, and mental illness. [7] Leading causes of poor outcomes due to childhood chronic illness, however, depend on geographic region.
Claire Lucia Wineland (April 10, 1997 – September 2, 2018) was an American activist, author, speaker and social media personality. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF).