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One of the diseases that increased dramatically was genital herpes. In response, ASHA created the National Herpes Resource Center in 1979. The Herpes Resource Center (HRC) was designed to meet the growing need for education and awareness about the virus. One of the projects of the HRC was to create a network of local support (HELP) groups.
Infectious diseases Herpes simplex encephalitis ( HSE ), or simply herpes encephalitis , is encephalitis due to herpes simplex virus . It is estimated to affect at least 1 in 500,000 individuals per year, [ 1 ] and some studies suggest an incidence rate of 5.9 cases per 100,000 live births.
The following is a timeline of the Rare Diseases Clinical Research Network: As a result of the Rare Diseases Act of 2002, on February 27, 2003, the ORDR (in conjunction with the National Center for Research Resources (NCRR), the General Clinical Research Consortium (GCRC) Program, and other NIH Institutes) requested applications for a Rare Diseases Clinical Research Network.
The Centers for Disease Control and Prevention's National Prevention Information Network (CDC NPIN) is a source of information and materials for both international and American HIV/AIDS, Viral Hepatitis, Tuberculosis, and Sexually Transmitted Disease education and prevention organizations.
The Rare Diseases Clinical Research Network (RDCRN) Contact Registry [1] [2] is a patient contact registry started in 2004 and sponsored by the National Institutes of Health (NIH). [ 3 ] [ 4 ] The RDCRN Contact Registry collects and stores the contact information of people who want to participate in RDCRN-sponsored research or learn more about ...
Pictures will need to be of acceptable quality as judged by our medical and technical experts and come with: a) appropriate permission to post the picture(s) and b) information that supports the diagnosis of the disease (such as a biopsy pathology report).
Melissa Rivers lost everything she owned in the Palisades fires on Jan. 7, but says her mother Joan's famous archive of jokes remains intact
The National Organization for Rare Disorders (NORD) was established in 1983 by individuals and families with rare diseases. [39] [40]EveryLife Foundation for Rare Diseases was founded in 2009 and is a nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable ...