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Cystic fibrosis (also known as CF or mucoviscidosis) is an autosomal recessive genetic disorder affecting most critically the lungs, and also the pancreas, liver, and intestine.
The following notable people have or had cystic fibrosis. Name Life Notability Reference Frankie Abernathy (1981–2007)
People with cystic fibrosis may experience salty skin, persistent coughing, lung infections such as pneumonia and bronchitis, and wheezing and shortness of breath. Cystic fibrosis can also cause poor weight gain and growth, nasal polyps , chronic sinus infections , clubbing or enlargement of fingers and toes, infertility in males, and rectal ...
Cystic Fibrosis Community Care (CF Community Care), [2] the largest Australian state-based organization dedicated to raising awareness of CF, providing support services and advocacy to people with CF and funding research into CF. CF Community Care represents over 1,700 people living with CF in New South Wales and Victoria.
By 2024, the company's group of CF medications were "broadly available" in over 60 countries. [64] Although access to Cystic Fibrosis medications is still limited in many countries, as of 2024 about two-thirds of people diagnosed are receiving the treatment around the world. [58] The high cost of Trikafta presents a significant barrier to ...
The Cystic Fibrosis Foundation (CFF) is a 501(c)(3) non-profit organization in the United States established to provide the means to cure cystic fibrosis (CF) and ensure that those living with CF live long and productive lives. The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of ...
Ivacaftor (brand name Kalydeco, developed as VX-770) is a medication approved by the FDA in 2012, for people with cystic fibrosis who have specific CFTR mutations. [ 74 ] [ 75 ] Ivacaftor was developed by Vertex Pharmaceuticals in conjunction with the Cystic Fibrosis Foundation and is the first medication that treats the underlying cause rather ...
Cystic Fibrosis Canada's primary objective is to fund CF research and care: the organization annually funds approximately 50 research projects, in addition to scholars, post-doctoral fellows, and students undertaking CF investigations. Each year, Cystic Fibrosis Canada awards more than $7 million in grants to CF researchers, and approximately ...