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The Marfan Foundation (formerly National Marfan Foundation, NMF) is a non-profit organization in the United States established to raise awareness and promote research on treatment of Marfan syndrome and related disorders.
Schiavelli was honorary co-chair of the National Marfan Foundation, an organization that serves those affected by Marfan syndrome, a condition that Schiavelli had. [4] Schiavelli also performed in a few video games, including Emperor: Battle for Dune (as Harkonnen Mentat Yanich Kobal) and as Dr. Hellman in the video game Corpse Killer.
Marfan syndrome (MFS) is a multi-systemic genetic disorder that affects the connective tissue. [ 6 ] [ 7 ] [ 1 ] Those with the condition tend to be tall and thin, with long arms, legs , fingers, and toes . [ 1 ]
Larson may have had an undiagnosed case of Marfan syndrome, which increases the risk of aortic dissection; the possibility was publicly promoted by the National Marfan Foundation to raise awareness about the condition, at the urging of the New York State Health Department. [26]
Antoine Bernard-Jean Marfan (French pronunciation: [ɑ̃twan bɛʁnaʁ ʒɑ̃ maʁfɑ̃]; June 23, 1858 – February 11, 1942) was a French paediatrician. He was born in Castelnaudary (département Aude , Languedoc-Roussillon ) to Antoine Prosper Marfan and Adélaïde Thuries. [ 1 ]
Antoine Marfan Award, National Marfan Foundation (1996) President, International Federation of Human Genetics Societies (2000-2002) Elected President, American Society of Human Genetics (1999) Elected Member, American Academy of Arts and Sciences (1997) Elected Fellow, American Association for the Advancement of Science (1995)
Reinking's son has Marfan syndrome, and Reinking worked with the Marfan Foundation, which is dedicated to raising awareness of the disease. She produced the 2009 documentary In My Hands: A Story of Marfan Syndrome. [36]
The Marfan Foundation; Medical Ambassadors International; ... National Sleep Foundation; National Stroke Association; New Orleans Musicians' Clinic; Newborn Foundation;